Schedule of Events

April 11, 2025

10:00 a.m. Registration
10:15 a.m. Welcome – Dr. Saj Joy, M.D., MBA, M.S., FAAPL, CEO of MUSC Health, Charleston

Session I: Patient Experience

Moderator: Caroline Delongchamps

10:20 a.m. Kristen Barner, M.Div; John Melville, M.D.
11:20 a.m. Q & A
11:35 a.m. to 12:30 p.m. Lunch

Session II: Autonomy, Dependence, and Disability

Moderator: Grant Goodrich, Ph.D.

12:30 p.m. Laura Specker Sullivan, Ph.D.
"Relational Autonomy and Disability"
1:00 p.m. Leigh Vaughan, M.D.
"End of Life Conversations: Is Depression a Disability"
1:30 p.m. Q & A

Session III: Personhood and Disorders of Consciousness

Moderator: Shelly Ozark, M.D.

1:45 p.m. Joseph Fins, M.D., D. Hum. Litt. (hc), M.A.C.P., F.R.C.P.
"The Rights of Individuals with Severe Brain Injury"
2:15 p.m. Eva Kittay, Ph.D.
"Moral Personhood"
2:45 p.m. Q & A
3:00 p.m. to 3:15 p.m. Coffee Break

Session IV: Emerging Technologies and Disability

Moderator: Ryan Boselowitz, MSW

3:15 p.m. Kevin Mintz, Ph.D.
"Ethical Dilemmas in Emerging Research on Cerebral Palsy. Old wine in new bottles?"
3:45 p.m. Joseph Stramondo, Ph.D.
"Disability, Identity, and Emerging Assistive Technology"
4:15 p.m. Q & A
4:30 p.m. Q & A for all speakers
5:00 p.m. Adjourn